Beyond the Count

Beyond the Count is a podcast about life with Immune Thrombocytopenia (ITP). Through personal stories, expert interviews and practical advice, each episode explores the everyday challenges and small wins of living with a rare autoimmune condition. Whether you’re newly diagnosed, supporting someone, or just looking to learn more, this podcast is here to inform, support and connect.

Beyond the Count is a health podcast hosted by ITP Australia and New Zealand, with 31 episodes on record and a Required Pod Score of 80.

ITP Australia and New Zealand hosts Beyond the Count, a health show with 31 episodes published.

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  Episode #31

  So, You've Been Diagnosed with ITP. Now What?

  Sep 23, 202615 minS2

  So, You've Been Diagnosed with ITP. Now What? Being diagnosed with ITP can feel like your world has been turned upside down. One minute, life feels completely normal. The next, you're learning about platelet counts, treatments, blood tests, specialist appointments, and a condition you've probably never heard of before. In this special episode of Beyond the Count , Danielle Boyle speaks directly to people recently diagnosed with Immune Thrombocytopenia and explores the questions, fears, and challenges so many of us face in those early days, weeks, and months after diagnosis. Together we'll explore: The emotional impact of hearing the words "you have ITP" Why uncertainty can be one of the hardest parts of diagnosis Treatment anxiety and information overload Fatigue, quality of life, and adjusting to a new reality The challenge of managing life while navigating a chronic condition How to find trusted information, support, and community Why things do get easier with time Drawing on her experience and years of supporting the ITP community, Danielle shares the lessons she wishes someone had told her sooner, along with practical reassurance for anyone still trying to make sense of their diagnosis. Whether you've been diagnosed recently or are supporting someone who has, this episode is here to remind you that you're not alone, and that support is available every step of the way. Support the show Thanks for listening to Beyond the Count For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au . Follow us on social media: Instagram: @ITP_ANZ Facebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New Zealand YouTube: @ITPANZ Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode. Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

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  Episode #28

  Decoding Risk Series: Part 3 - The Words that Trick Our Brains

  Jul 22, 202619 minS2

  Decoding Risk Series — Part 3: The Words That Trick Our Brains When you read that a side effect is "common" or "rare", what do those words actually mean? For many patients, these terms can trigger fear and uncertainty because the way we interpret risk often differs from how clinicians and researchers use the same language. In Part 3 of the Decoding Risk series, Danielle Boyle is joined by haematologist Dr Danny Hsu to explore one of the biggest communication gaps in healthcare: risk terminology. Together, they unpack: what medical terms like common , uncommon , rare , and very rare actually mean; why patients often overestimate the likelihood of side effects; the surprising research behind how people interpret risk words; practical ways to visualise and understand risk more accurately; and how asking one simple question can completely change the conversation about treatment decisions. Using real-world analogies and examples, this episode helps make confusing medical language far more understandable and empowering. If you've ever looked at a medication leaflet, heard a doctor describe a side effect as "common," and immediately assumed it was likely to happen to you, this episode is for you. Support the show Thanks for listening to Beyond the Count For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au . Follow us on social media: Instagram: @ITP_ANZ Facebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New Zealand YouTube: @ITPANZ Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode. Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

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  Episode #27

  Clinical Trials Explained: What they are, How they work and How to know if they're right for you

  Jul 8, 202643 minS2

  Clinical trials can feel complicated, overwhelming, and sometimes even a little intimidating. Yet every treatment available today has reached patients because people chose to participate in clinical research. In this episode of Beyond the Count , Danielle Boyle is joined by leading haematologist Dr Rob Bird to demystify clinical trials for people living with Immune Thrombocytopenia (ITP). Together, they explain what clinical trials are, how they are designed, the different trial phases, and what participation really involves. They also explore the potential benefits and risks, the importance of informed consent, and why patient wellbeing, fatigue, and quality of life are now key measures in modern clinical research. Whether you're considering a clinical trial, curious about how new ITP treatments are developed, or simply want to better understand your options, this episode provides practical, balanced information to help you make informed decisions. Support the show Thanks for listening to Beyond the Count For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au . 📱 Follow us on social media: Instagram: @ITP_ANZ Facebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New Zealand YouTube: @ITPANZ 🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode. Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

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  Episode #25

  Watch and Wait: Why doing nothing is sometimes the best medicine.

  Jun 10, 202626 minS1

  For many parents, hearing that their child has ITP is overwhelming. But what can feel even more confronting is being told that the best approach might be to “watch and wait.” In this episode of Beyond the Count , Danielle Boyle is joined by paediatric haematologist Dr Melanie Jackson to explain why observation-based care is often the safest and most appropriate first step for children with ITP. Together, they discuss: What “watch and wait” actually means in real life Why many children recover without treatment How clinicians assess bleeding risk rather than relying on platelet counts alone The signs and symptoms parents should be monitoring at home When treatment becomes necessary and what that looks like How to support your child to live as normally and safely as possible This episode provides clear, practical guidance for parents navigating early diagnosis. It helps reframe “doing nothing” as active, evidence-based care, while giving families the tools and confidence to monitor, support, and advocate for their child. Support the show Thanks for listening to Beyond the Count For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au . 📱 Follow us on social media: Instagram: @ITP_ANZ Facebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New Zealand YouTube: @ITPANZ 🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode. Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

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  Episode #24

  Decoding Risk Series: Part 1 - Why Side Effects Happen

  Jun 7, 202626 minS1

  Why Side Effects Happen | Decoding Risk (Part 1) Starting a new treatment for ITP can feel overwhelming, especially when side effects enter the conversation. For many patients, it’s not just the treatment itself that creates uncertainty; it’s the “what if.” In Part 1 of the Decoding Risk series, host Danielle Boyle is joined by haematologist Dr Danny Hsu to break down why side effects happen in the first place. Using clear, relatable analogies, they explore: Why medications can affect more than one pathway in the body How “off-target effects” lead to common side effects Why some treatments may feel like they are “working too well” What infusion reactions actually are and why they happen How your liver and kidneys process medications after they’ve done their job This episode helps you move beyond fear and into understanding. You’ll learn why side effects are often predictable, why they do not mean something has gone wrong, and how to approach them with confidence. If you’ve ever read a medication leaflet and felt anxious or experienced a side effect and wondered what it means, this episode will give you the clarity, reassurance, and language to have better conversations with your healthcare team. Support the show Thanks for listening to Beyond the Count For more information, resources and lived experiences about Immune Thrombocytopenia (ITP), visit ITPANZ.org.au . 📱 Follow us on social media: Instagram: @ITP_ANZ Facebook: facebook.com/ITPANZ LinkedIn: ITP Australia & New Zealand YouTube: @ITPANZ 🎧 Subscribe to Beyond the Count on your preferred podcast platform so you never miss an episode. Do you have feedback or a story to share? We’d love to hear from you. Get in touch at info@itpaustralia.org.au

  ListenShow Notes

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