CODED: Genetics

CODED is a podcast brought to you by Genetic Support Foundation and hosted by Katie Stoll, MS, CGC and Dr. Stephanie Meredith. We explore the most pressing issues at the intersection of genetics, healthcare policy, and bioethics. CODED will be of interest to healthcare professionals, policy makers, and anyone interested in understanding how advances in genetic medicine are reshaping healthcare delivery and society at large.

CODED: Genetics is a society podcast hosted by Katie Stoll and Stephanie Meredith, with 12 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Katie Stoll and Stephanie Meredith hosts CODED: Genetics, a society show with 12 episodes published.

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  Episode #3

  Changing The Trisomy 13 And 18 Narrative

  May 1, 202659 minS2

  <p>Unfortunately and inaccurately, the phrase "incompatible with life" still shows up around trisomy 13 and trisomy 18, even as survival data, clinical experience, and professional guidance continue to evolve. We sit down with two leaders who have helped shape a more accurate and humane standard of care: Dr. John Carey, longtime clinical geneticist and SOFT co-founder, and Nick Holladay, president and CEO of the Support Organization for Trisomy (SOFT).<br/><br/>We talk through what families were told decades ago, what has changed, and why the most important shift is simple but hard: replacing assumptions with evidence and individualized care planning...

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  Episode #2

  World Down Syndrome Day: Reframing a Diagnosis with Jack's Basket

  Apr 1, 202652 minS2

  <p>The first seconds after a Down syndrome diagnosis can echo for a lifetime and the difference often comes down to a few words. We sit down with Carissa Carroll, founder of Jack’s Basket, and Lauren Talhelm, Jack’s Basket Medical Education Coordinator, to talk about what families actually experience when trisomy 21 is identified at birth or through prenatal screening, and why the “bad news” framing can quietly shape fear, stigma, and expectations.<br/><br/>Carissa takes us back to Jack’s birth diagnosis and the isolation that can hit when the message is delivered abruptly or without warmth. Lauren sha...

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  Episode #1

  How QALYs Devalue Lives of Disabled People And What We Can Do About It

  Mar 19, 202650 minS2

  <p>A single number deciding who gets care sounds efficient—until that number discounts your life. We dive into the world of QALYs (quality-adjusted life years) with attorney and policy leader Sylvia Yee from the Disability Rights Education and Defense Fund to unpack how “objective” health economics can quietly devalue disabled people, shape coverage decisions, and ripple through prenatal testing and public policy.<br/><br/>We break down how the EQ-5D survey compresses life into five domains—mobility, self-care, usual activities, pain, and anxiety or depression—then turns responses into a score that reduces the worth of a disabled person’s y...

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  Episode #8

  Echoes Of Eugenics In Modern Tech

  Dec 31, 20251h 7mS1

  <p>"Super babies," subway ads, and “ best baby” promises are grabbing headlines, but the story underneath is older and more complicated. We sit down with seasoned genetic counselors Laura Hercher and Bob Resta to unpack how early eugenic ideas are resurfacing through modern pronatalism, IVF add-ons, and polygenic embryo selection—now marketed as responsible parenting and better public health. The conversation pulls apart the science, the sales pitch, and the social stakes.<br/><br/>We start with a clear primer on positive and negative eugenics and how today’s rhetoric reframes “optimization” as health while centering IQ and status. Laura and Bob expl...

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  Episode #7

  Holiday DNA Deals Or Pandora's Box

  Dec 3, 20251h 4mS1

  <p>Holiday sales make DNA kits look like shortcuts to certainty, but the fine print tells another story. We sit down with genetic counselor and rare disease advocate Devin Shuman to pull back the curtain on direct-to-consumer genetics—how “raw data” portals overwhelm families and how risks interpreted as conclusive results quietly reshape medical records and care.<br/><br/>Together we map the real differences between consumer reports and clinical-grade testing: phenotype-driven interpretation, rigorous variant curation, and a plan that aligns with your health questions. Devin shares vivid cases—from anxiety-inducing “cancer” flags to companies that market tests for conditions without vali...

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