collectively coeXisting

Explore the untold stories of females impacted by X-linked conditions. Hosted by Emma Bliss and Taylor Kane of Remember The Girls, “collectively coeXisting” brings to light the reality of being a female impacted by an X-linked condition and the general challenges women face within the healthcare system.Hear from X-linked carriers and affected females about their journeys with genetic testing, family planning, physical symptoms, mental health, and everything in between. Also learn from experts about topics such as carrier screening, genetic counseling, advancements in research, and more.

collectively coeXisting is a society podcast hosted by Remember The Girls, with 98 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Remember The Girls hosts collectively coeXisting, a society show with 98 episodes published.

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  collectively coeXisting

  Ep. 69: Discussing Family Health History with Dena DNA

  Apr 10, 202527 minS0

  <p>Dena is a board-certified genetic counselor with 9 years of clinical experience, a content creator, science communicator and healthcare thought leader. Formerly the Endowed Counselor of Hereditary Gastrointestinal Cancer Prevention with the UCSF Cancer Genetics and Prevention program, she left clinic to grow her personal brand, Dena DNA, a media brand with a mission to spread awareness of medical genetics and genetic counseling to the general public through media and marketing techniques not typically used by the medical community. Dena has consulted for major laboratories and creates sponsored content for companies and organizations in the genetics and healthcare space. Dena...

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  collectively coeXisting

  Ep. 68: Choroideremia with Michelle Holbrook

  Mar 31, 202531 minS0

  <p>*This month in partnership with ⁠Choroideremia Research Foundation⁠*</p><p>Our Carrier Connections program features a different X-linked condition each month to increase awareness of X-linked conditions and how they impact the lives of women and girls.</p><p>This month, we are featuring choroideremia (CHM). CHM is an X-linked disorder caused by mutations in the gene CHM, which produces a protein that plays a critical role in the cell’s ability to transport proteins and organelles within and outside of the cell. When this gene is dysfunctional, the cell can no longer support this protein escort ability, resulting in pre...

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  collectively coeXisting

  Ep. 67: X-Linked Retinal Diseases with Dr. Sena Gocuk

  Mar 10, 202525 minS0

  <p>*This month in partnership with Choroideremia Research Foundation*</p><p>Our Carrier Connections program features a different X-linked condition each month with the goal to increase awareness of X-linked conditions and how they impact the lives of women and girls.</p><p>This month, we are featuring choroideremia (CHM). CHM is an X-linked disorder caused by mutations in the gene, CHM, which produces a protein that plays a critical role in the cell’s ability to transport proteins and organelles within and outside of the cell. When this gene is dysfunctional, the cell can no longer support this protein es...

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  collectively coeXisting

  Ep. 66: Disclosing an X-linked diagnosis to extended family with Savannah & Alexis

  Dec 19, 202457 minS0

  <p>Our Carrier Connections program features a different X-linked condition each month with the goal to increase awareness of X-linked conditions and how they impact the lives of women and girls. From time to time we also feature topics important to the X-linked community.</p> <p>This month, we are highlighting the topic of discussing health history with your family and more specifically disclosing an X-linked diagnosis.</p> <p>Our guests for this episode are Savannah and Alexis. </p> <p>Savannah and her son, Titus, have ALD and were diagnosed through newborn screening in 2021. The Merrill’s are a military fa...

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  collectively coeXisting

  Ep. 65: Association Xtraordinaire Remembers the Girls with CTD

  Nov 28, 202424 minS0

  <p>Our Carrier Connections program features a different X-linked condition each month with the goal to increase awareness of X-linked conditions and how they impact the lives of women and girls.</p> <p>This month, we are featuring creatine transported deficiency, or CTD. We are partnering with ⁠Association Xtraordinaire⁠ to bring you interviews and educational graphics on our social media pages.</p> <p>Our guests for this episode is Carole Chehowah, Vice President of Association Xtraordinaire. She is a mom of a 34-year-old daughter with CTD who diagnosed after 16 years after years of wondering. Carole is fighting for girls' recognition in X...

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