CoRDS Cast

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

CoRDS Cast is a health podcast hosted by Sanford CoRDS, with 53 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Sanford CoRDS hosts CoRDS Cast, a health show with 53 episodes published.

Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.

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  Episode #51

  Episode 51 - Maple Syrup Urine Disease (MSUD)

  Jun 2, 202523 minS1

  <p>Welcome to another episode of CoRDS Cast where Polly had the honor of sitting down with Dr. Karen Dolins, who is a registered dietician and is also a mother to her daughter who was diagnosed with Classic MSUD. We also have the privilege to sit down with Sandy Bulcher, who is a nurse and the mother to her son who was diagnosed with Classic MSUD. </p><p>In this episode we will not only get to hear about MSUD but we will also get to hear the story of these two amazing mothers and their children. </p><p>If...

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  Episode #50

  Episode 50 - NUS1 Foundation

  Jan 30, 202527 minS1

  <p>On this episode of CoRDS Cast you will hear from Andrea Johnson and Carissa Carman who are not only the co-founders of the NUS1 Foundation, but also amazing parents to their sons who are diagnosed with NUS1. </p> <p>We also get the pleasure of speaking with Richard Steet who is the Director of Research at the Greenwood Genetic Center and Heather Flanagan-Steet who is the Associate Director of Research at the Greenwood Genetic Center. Richard and Heather are both heavily involved with NUS1 research and with the help of Andrea and Carissa, come together to make an impact...

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  Episode #49

  Episode 49 - BFLS Inc.

  Aug 1, 202425 minS1

  <p>Tune in as Polly sits down with Kearstyn Shaw and Dr. David Picketts with BFLS Incorporated. </p> <p>Kearstyn's son was diagnosed with BFLS in 2021. Kearstyn has been a strong advocate for her son and her community since the diagnosis.</p> <p>Dr. David Picketts is a researcher at the Ottawa Hospital Research Institute. His research is focused on understanding the role of epigenetic regulators in brain development and neurodevelopmental disorders (NDDs). Dr. Picketts works closely with Kearstyn to help find a cure and treatments for BFLS. </p> <p>For more information, you can visit: www.bflsinc.com</p> <...

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  Episode #48

  Episode 48 - KBG Syndrome Association

  Jul 12, 202417 minS0

  <p>On this episode of CoRDS Cast, Polly sits down with Brianna Dose with the KBG Syndrome Association. Brianna is not only a strong advocate for her community but she also has a daughter with this rare condition. While being a pediactric nurse in neurology, she was put in the exact postition she needed to be to help her daughter and fight to find answers. </p> <p><br></p> <p>To learn more about the KBG syndrome association, please visit: kbgsyndrome.org</p>

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  CoRDS Cast

  Episode 47 - Coffin Lowry Syndrome Foundation

  Jun 5, 202421 minS0

  <p>On today's episode, Alyssa and Polly sit down with Theresa who is a part of the Coffin Lowry Syndrome Foundation. </p> <p>Theresa's son was diagnosed with Coffin Lowry Syndrome at the age of four. Theresa discusses the long journey ahead to finding a diagnosis for her son. Theresa has been a major part in growing their community with over 800 members and devoted her life to finding a cure. If you would like to learn more about the Coffin Lowry Syndrome Association, please visit: www.clsf.info</p> <p>Enjoy!</p>

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