CURE SYNGAP1 PODCAST aka SYNGAP10

SYNGAP10 is a 10 minute weekly blog to keep parents and families up to date on what the team at SynGAP Research Fund (SRF) is doing to advocate for patients& advance research into SYNGAP1. If you do nothing else, listen to or watch this and let us know what you think.

CURE SYNGAP1 PODCAST aka SYNGAP10 is a business podcast hosted by Syngap Research Fund, 501(c)(3), with 214 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Syngap Research Fund, 501(c)(3) hosts CURE SYNGAP1 PODCAST aka SYNGAP10, a business show with 214 episodes published.

Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.

• 

  Episode #215

  Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214

  Aug 10, 202610 min

  Monday, August 10, 2026 - Week 33 Make sure to watch #S10e213 first! https://www.linkedin.com/posts/curesyngap1_camp4-trial-approved-in-australia-argentina-activity-7491598254027984896-wWTg 145 done! Out of 516 in US per last census: ( https://www.linkedin.com/posts/curesyngap1_syngap1census-syngap1-census-activity-7478070129340215296-6Hjx ) CLINICAL TRIAL READINESS SURVEY - http://curesyngap1.org/CTRpoll Do it now, let us figure out the state of our community. CITIZEN Sign up now! https://www.citizen.health/ai-advocate/syngap1 Everyone with a sick kid needs this. Different from CONNECT: https://curesyngap1.org/curesyngap1connect Make sure we know how to reach you. STUDIES ARE HAPPENING - Albus, thank you to those families. Plug it in. - Combi[o]mics - Thank you for doing this if invited. - Everyone will get an invite to do an ORCA Validation Study, please do this. If you don’t get that email by end of August, bug us. We are only inviting those we can confirm have a mutation. PERSONAL FUNDRAISERS Fundraisers advance our mission & help you connect to community #ForAda curesyngap1.org/forada is over $104k of $10k #4Ford curesyngap1.org/4ford is over $20k of $20k SIBLINGS - Go Porter! cureSYNGAP1.org/Sibling THINGS TO LOOK FORWARD TO… 5TH SCRAMBLE FOR SYNGAP, SC – 54 days till October 3rd Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26 SHOOT FOR SYNGAP, UT – 96 days till November 14th curesyngap1.org/calendar/shoot-for-syngap1 FIGHT FOR FELIPE, MA - 111 days till November 29th curesyngap1.org/Fight26 CURE SYNGAP1 CONFERENCE - 115 days until December 3rd & 4th cureSYNGAP1.org/Reg26 rooms available: ‭ cureSYNGAP1.org/denhyatt for $159. In on Wed, out on Saturday. PUBMED Pubmed 2026 is at 47. +14 vs the week. (61 last year was +9) We are already at the 3rd highest year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date USA : Use your ICD-10, F78.A1 SOCIAL MATTERS 5,159 LinkedIn. https://www.linkedin.com/company/curesyngap1 1.6k YouTube. https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 43.7k Insta https://www.instagram.com/curesyngap1 Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 214 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy

  ListenShow Notes
• 

  Episode #214

  CAMP4 Trial Approved in Australia & Argentina, Connect for news, Ada & Ford Fund a grant, #S10e213

  Aug 7, 202610 min

  Friday, August 7, 2026 - Week 32 CAMP4 - Gaining momentum - Approval for trials in Australia & +$50M of cash from investors: https://investors.camp4tx.com/news-releases/news-release-details/camp4-therapeutics-secures-australian-regulatory-clearance - Profile on CNBC Cures: https://www.cnbc.com/2026/08/06/camp4-advances-rare-disease-treatment-for-syngap1-into-human-trials.html Where they mentioned approval in Argentina! $CAMP closed at $4.53 yesterday. https://www.google.com/finance/beta/quote/CAMP:NASDAQ MAKE SURE YOU ARE REGISTERED WITH CONNECT https://curesyngap1.org/curesyngap1connect/ USA : Use your ICD-10, F78.A1 CITIZEN Sign up now! https://www.citizen.health/ai-advocate/syngap1 SOCIAL MATTERS 5,156 LinkedIn. https://www.linkedin.com/company/curesyngap1 1.6k YouTube. https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 43.7k Insta https://www.instagram.com/curesyngap1 Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 213 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy

  ListenShow Notes
• 

  Episode #213

  #Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212

  Jul 5, 202610 min

  #Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212 Saturday, July 4, 2026 - Week 27 #Future4Ford! Already at $3,500+! Share. Thank you to the Family. This is the model for newly diagnosed, call us, set up a page, help us help your loved one. cureSYNGAP1.org/4Ford CENSUS - 1,806 https://curesyngap1.org/blog/syngap1-census-2026-update-45-q2-total-1806/ Per https://docs.google.com/spreadsheets/d/1oJwMysR2wyTxe91zLlKJglNa0NySPxkBF0PRiV6mBmM/edit?usp=sharing , no change in Germany, UK, or Netherlands. This is clearly wrong. MERCH - 9 days left! New t-shirts! Buy for everyone! There are some funny ones this year and the classics. cureSYNGAP1.org/Bonfire CAMP4 has been busy! Meeting with one of our families: https://www.linkedin.com/posts/syngap1-share-7473374060614201345-SeKO/ Shoutout on NASDAQ: https://www.linkedin.com/posts/camp4-therapeutics_syngap1awareness-regrna-syngap1-activity-7474823632972820480-UMqi $CAMP closed at $4.43 yesterday. https://www.google.com/finance/beta/quote/CAMP:NASDAQ BONES – This is not medical advice, I am not a doctor. Talk to a doctor AND know your facts. https://curesyngap1.org/blog/navigating-a-lifetime-of-diagnoses-michaels-syngap1-journey-and-the-effects-of-anti-seizure-medications-on-bone-density/ Valproate is the active Ion, it comes from Valproic Acid (Depakene), Sodium Valproate or Divalproex Sodium (Depakote). They all cause bone loss by stoping stomach from absorbing, then robbing bones, then flushing out. More and longer is worse. Vitamin D and Calcium can help but they need to start early and it’s better to just find another drug. Also insurance likes it because it’s cheap and old – demand better. “Valproic acid and clobazam were commonly used for epilepsy treatment, while risperidone, aripiprazole, and guanfacine were commonly used for behavior management. Valproate and lamotrigine were more effective at reducing seizure frequencies or maintaining seizure freedom than other anti-seizure medications.” Clinical signatures of SYNGAP1-related disorders through data integration https://pmc.ncbi.nlm.nih.gov/articles/PMC12419475/ THINGS TO LOOK FORWARD TO… 5TH SCRAMBLE FOR SYNGAP, SC – 91 days till October 3rd Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26 SHOOT FOR SYNGAP, UT – 133 days till November 14th curesyngap1.org/calendar/shoot-for-syngap1/ FIGHT FOR FELIPE, MA - 148 days till November 29th curesyngap1.org/Fight26 CURE SYNGAP1 CONFERENCE - 152 days until December 3rd & 4th cureSYNGAP1.org/Denver rooms available: ‭ cureSYNGAP1.org/denhyatt for $159. In on Wed, out on Saturday. PUBMED Pubmed 2026 is at 40. +13 vs the week. (61 last year was +9) We are already at the 4th highest year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date Thanks to Dr. Stephen Smith for this exciting paper, especially in the context of ASOs… Genetic rescue of disrupted synaptic protein interaction network dynamics following SYNGAP1 reactivation https://pubmed.ncbi.nlm.nih.gov/42362191/ USA 🇺🇲: Use your ICD-10, F78.A1 SOCIAL MATTERS 5,106 LinkedIn. https://www.linkedin.com/company/curesyngap1 1.59k YouTube. https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 43.7k Insta https://www.instagram.com/curesyngap1 Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 212 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy

  ListenShow Notes
• 

  Episode #212

  We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211

  Jun 25, 202610 min

  Friday, June 26, 2026 - Week 26 BIO was good. Need a mouse lab to test molecules all year long. https://www.linkedin.com/posts/graglia_syngap-syngap1-mousemodels-ugcPost-7476041484408901633-Zldd/ MDBR was big, not just Justin A.! Thank you Dr. McKee, Heather and others. cureSYNGAP1.org/MDBR26Recap MERCH - 19 days left! New t-shirts! Buy for everyone! There are some funny ones this year and the classics. cureSYNGAP1.org/Bonfire GENETIC TESTING Valuable resource as you have questions. curesyngap1.org/GT WARRIORS - Phoenix and Kenna cureSYNGAP1.org/Warrior THINGS TO LOOK FORWARD TO… WEBINAR: Understanding ASOs & Informed Consent June 30 4:30 ET curesyngap1.org/calendar/understanding-asos-informed-consent/ 5TH SCRAMBLE FOR SYNGAP, SC – 99 days till October 3rd Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26 SHOOT FOR SYNGAP, UT – 141 days till November 14th fb.watch/HRnwf9FnEB/ FIGHT FOR FELIPE, MA - 155 days till November 29th curesyngap1.org/Fight26 CURE SYNGAP1 CONFERENCE - 159 days until December 3rd & 4th cureSYNGAP1.org/Denver rooms available: ‭ cureSYNGAP1.org/denhyatt for $159. In on Wed, out on Saturday. PUBMED Pubmed 2026 is at 38. +12 vs the week. (61 last year was +9) We are already at the 4th highest year. https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date Props to Dr. Frazier for yet another paper on SYNGAP1 based on his study, one of the best grants ever. https://onlinelibrary.wiley.com/doi/10.1111/dmcn.70337 USA 🇺🇲: Use your ICD-10, F78.A1 SOCIAL MATTERS 5,074 LinkedIn. https://www.linkedin.com/company/curesyngap1 1.59k YouTube. https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 43.8k Insta https://www.instagram.com/curesyngap1 $CAMP closed at $3.92 yesterday. https://www.google.com/finance/beta/quote/CAMP:NASDAQ Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 211 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy

  ListenShow Notes
• 

  Episode #211

  #ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e210

  Jun 19, 202610 min

  Friday, June 19, 2026 - Week 25 June 21 is SYNGAP1 Awareness Day, but we have made it SYNGAP1 Awareness month! Why 6/21? Because 6p21.32 Donate! cureSYNGAP1.org/Donate #ThisIsOursToLose & #BurdenHopeProgress watch #S10e208 https://curesyngap1.org/podcasts/syngap10/tony-update-thisisourstolose-more-great-results-from-camp4-nightofimpact-in-9-days-s10e208/ New family email, very good, lots of questions. It’s all here. Reach out, we are here for you and you are welcome in this community – you are part of it whether you like it or not. Raise money. Join our host committee for 2nd SF event next year. Believe that we are doing the best we possibly can, and you would be adrift without a PAG. If you think this is painful, imagine if we weren't here! Register for the Conference. Book tickets to DEN now. cureSYNGAP1.org/Denver Join us -- make this org better for all of us and all our kids for all their lives. Complex work doesn't fit neatly in 10 minutes anymore... Health Economics and Market Access work is going well, we will put out an RFP shortly. NATURAL HISTORY Goes On! Make sure you are in it. https://curesyngap1.org/resources/studies/syngap1-prommis/ Orlando/McKee Grant "Validating Remote Developmental Assessments in SYNGAP1-Related Disorders" cureSYNGAP1.org/PR49 🤖 ARI Sign up now, s/he keeps getting better, and then connect to Citizen Health, if you are not on Citizen Health, fix that. https://www.citizen.health/ai-advocate/syngap1 https://ari.citizenhealth.com/ KUDOS - The fifth MDBR, Justin Albrecht rode 70 remote in NC. Raised $2k. - Rachel Jasiczek (Yah-she-check) was a guest on Remarkable Futures Podcast - https://open.spotify.com/episode/7dYmHcXEu58H4C8VCoZ9V1?si=x3xvui86TY2cyGHyS3mGDQ - Collective: CURE SYNGAP1 Collective - cureSYNGAP1.org/PR48 Collective page - cureSYNGAP1.org/Collective More fundraisers! WARD - Shoot for SYNGAP on November 14th in Utah! https://fb.watch/HRnwf9FnEB/ Another in Boston in the works… WEBINAR: Understanding ASOs & Informed Consent June 30 4:30 ET https://curesyngap1.org/calendar/understanding-asos-informed-consent/ 5TH SCRAMBLE FOR SYNGAP, SC – 106 days till October 3rd Classic case of a small event becoming an institution! cureSYNGAP1.org/Scramble26 CURE SYNGAP1 CONFERENCE - 166 days until December 3rd cureSYNGAP1.org/Denver rooms available: ‭ cureSYNGAP1.org/denhyatt for $159. In on Wed, out on Saturday. USA: use your ICD-10, F78.A1: https://onlinelibrary.wiley.com/doi/10.1002/epi.70142 PUBMED Pubmed 2026 is at 37. +12 vs the week. (61 last year was +9) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date SOCIAL MATTERS 5,058 LinkedIn. https://www.linkedin.com/company/curesyngap1 1.58k YouTube. https://www.youtube.com/@CureSYNGAP1 11.1k Twitter https://twitter.com/cureSYNGAP1 45k Insta https://www.instagram.com/curesyngap1 $CAMP closed at $4.13 yesterday. https://www.google.com/finance/beta/quote/CAMP:NASDAQ Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10 Episode 210 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy

  ListenShow Notes

Based on semantic analysis of episode topics and host coverage, this show is a strong guest fit for executives in:

Industry fit is computed by PitchCentric using vector embeddings of the show's episode catalog.