
Fitness Fiasco
017 From Tragedy To Advocacy: Raising Awareness For Connective Tissue Disorders
<p>A 15-year-old athlete. A hidden aortic time bomb. A family who refused to let the story end there. We sit down with Lucas’s parents, Jeanette and Mike, to trace the moments that followed his sudden passing and the answers uncovered by a post-mortem diagnosis of Loeys-Dietz syndrome. What emerges is a clear, compassionate roadmap for parents, coaches, and clinicians to recognize connective tissue disorder red flags earlier—and a powerful vision for turning grief into prevention.<br/><br/>Jeanette takes us through Lucas’s early medical puzzle: bilateral clubfoot, months of casting, a tenotomy, braces, and visits to a half...

