Fragile X Australia Podcast

Fragile X Association of Australia is a member-based organisation which serves as the peak body for the Fragile X community across Australia. We offer information, support, education, advocacy and referrals to individuals who are impacted by Fragile X-associated disorders and to their families, carers and health and disability service providers. Visit http://fragilex.org.au

Fragile X Australia Podcast is a health podcast hosted by Unknown Host, with 45 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Unknown Host hosts Fragile X Australia Podcast, a health show with 45 episodes published.

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  Fragile X Australia Podcast

  Sensory Processing and Fragile X Syndrome (Bev Kadish)

  Aug 5, 202641 min

  Occupational Therapist Bev Kadish breaks down what sensory processing is and how to build a personalised sensory diet for someone with Fragile X syndrome, covering deep pressure input, sensory snacks, breathing techniques, the emergency backpack, and the withdrawal area. 02:00 What is sensory processing? 06:18 What is a sensory diet? 09:44 Regulation and feeding the need 11:01 Structuring a sensory diet: meals and snacks 16:41 Deep pressure input for organising the nervous system 22:33 Sensory snacks: fidget, vibration and oral input 25:38 Breathing techniques and regulation tools 30:25 The emergency backpack and the withdrawal area 36:35 Knowing when a sensory diet is working

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  Fragile X Australia Podcast

  Medications and FXS (Dr Jonathan Cohen)

  May 19, 202630 minS0

  Dr Jonathan Cohen MD, Medical Director of the Fragile X Alliance Clinic in Melbourne, discusses medications and Fragile X Syndrome. Dr Cohen is a regular presenter in Australia, New Zealand and internationally on topics associated with Fragile X, with a clinical practice encompassing both children and adults living with Fragile X syndrome or FMR1 premutation conditions.

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  Fragile X Australia Podcast

  Understanding FXTAS (Dr Alex Fois)

  Sep 30, 202557 minS0

  Presented by Dr Alex Fois BSc (Adv; Hons I, Medal) BM BCh (Oxon) MRCP FRACP PhD. Dr Fois. Dr Fois is a specialist neurologist and has a subspecialty interest and training in movement disorders including Parkinson's disease, tremor, ataxia, dystonia, and in the injection of botulinum toxin for the treatment of neurological symptoms. This webinar provides a comprehensive overview of Fragile X-associated Tremor Ataxia syndrome (FXTAS), a late onset condition which affects some carriers of the Fragile X premutation. Covering:  differentiating between conditions caused by FMR1 gene premutation/mutation; cause of FXTAS; incidence; symptoms; diagnostic pathways; research; management of symptoms.<b...

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  Fragile X Australia Podcast

  Sensory Diets & Fragile X Syndrome (Bev Kadish)

  Jun 20, 202538 minS0

  Presented by Bev Kadish, occupational therapist, from WriteStart OT. Discussion of sensory diets as a personalized plan of sensory activities designed to help individuals better regulate their sensory systems and improve focus and attention. It is a structured approach to providing the right amount and type of sensory input throughout the day. Individuals with Fragile X syndrome often have difficulties with sensory processing and regulation, and sensory diets may assist with helping the child or adult remain calm, focused and organised. <br />The webinar outlines: * how to create sensory diet * an example of a proactive sensory diet * activating and calming mo...

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  Fragile X Australia Podcast

  IVF & PGD for Fragile X PM Carriers (Dr Mark Livingstone)

  May 28, 202533 minS0

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