GOALS: An ALS United Podcast

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

GOALS: An ALS United Podcast is a business podcast hosted by Unknown Host, with 73 episodes on record and a Required Pod Score of 80.

Unknown Host hosts GOALS: An ALS United Podcast, a business show with 73 episodes published.

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  Episode #75

  Understanding ALS Clinical Trials with Jeremy Shefner, MD, PhD

  Sep 28, 202643 min

  Jeremy Shefner, MD, PhD, had decades of experience leading ALS research. In this GOALS Podcast, he talks about measuring the success of potential therapies, what is needed for successful clinical trials, and early ALS symptoms and diagnosis. Learn more about his work at the Barrow Neurological Institute at https://www.barrowneuro.org/person/jeremy-shefner-md-phd/ Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org Support an ALS United Mid-Atlantic Walk at www.alsunitedwalk.org

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  Episode #74

  Candice Ray on Joining the ALS United Mid-Atlantic Board

  Sep 21, 202627 min

  Candice Ray is the Founder and Chief Executive Officer at Helping Hands Warming Hearts LLC. She is one of the newest members of the ALS United Mid-Atlantic board. In this discussion, Candice shares her personal experience with ALS, the skills she brings to the board, and her drive to expand advocacy and programs to help families impacted by ALS. Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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  Episode #73

  Robert Bowser, PhD on the Science of ALS, Biomarkers, Tissue Samples and more

  Sep 14, 202635 min

  Robert Bowser, PhD, is Chief Scientific Officer and the John P. and Betty Van Denburgh Chair for Neuromuscular Disease, and professor and Chair of the Department of Translational Neuroscience at Barrow Neurological Institute. He joins the ALS United Mid-Atlantic GOALS Podcast to discuss his 30 years of experience in ALS research, advances in understanding of biomarkers, the value of brain and tissue donation, and empowerment through science. To learn more about his work, visit: https://www.barrowneuro.org/person/robert-bowser-phd/ Thank you to ⁨@ALSArizona⁩ for making this connection and thank you to ⁨@BarrowNeuro⁩ for their continued work to understand ALS and get us closer to new treatments. Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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  Episode #72

  Samuel Adams Supports the Lehigh Valley ALS United Walk - GOALS Podcast

  Sep 8, 202630 min

  Jess and Jeff from Samuel Adams Brewery join the ALS United Mid-Atlantic GOALS Podcast to talk about their efforts to raise money and awareness for the ALS cause. Join them to support the Lehigh Valley ALS United Walk at www.lehighvalleyalsunitedwalk.org or find an ALS United Walk near you at www.alsunitedwalk.org Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. T o learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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  Episode #71

  Kim Eppeheimer Talks Joining the Board of ALS United Mid-Atlantic - GOALS Podcast

  Aug 31, 202631 min

  Kim Eppeheimer is one of the most recent additions to the ALS United Mid-Atlantic Board. In this episode of our GOALS Podcast, Kim shares her family's ALS story, the experience she learned as her mother and siblings came together as caregivers, and her hopes for the future of ALS United Mid-Atlantic. Kim is a non-profit leader in Delaware and she is excited to support the Delaware ALS United Walk. Learn more at www.alsunitedwalk.org Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

  ListenShow Notes

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