HAE Speaks

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

HAE Speaks is a business podcast hosted by US HAEA, with 69 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

US HAEA hosts HAE Speaks, a business show with 69 episodes published.

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  HAE Speaks

  Stronger Together: One Family's HAE Journey

  Aug 1, 202617 min

  In this month's episode of the HAE Speaks Podcast, one family shares their journey of living with Hereditary Angioedema (HAE) together. From navigating diagnosis and treatment to supporting one another through the challenges of daily life, they offer an honest conversation about what it means to face HAE as a family. Through their shared experiences, listeners will gain insight into the power of resilience, the importance of understanding each family member's perspective, and the strength that comes from navigating HAE together. Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda

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  HAE Speaks

  Summer Safety Tips with the HAEA Health Team

  Jun 10, 20267 min

  Join HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, as they discuss important summer safety considerations for individuals and families living with HAE. The conversation is designed to help the HAEA community stay safe, healthy, and prepared while enjoying summer activities with family and friends! Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda

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  HAE Speaks

  Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer

  May 13, 202619 min

  In this new HAE Speaks Podcast series, Roundtable with the CEO , HAEA CEO & Chairman of the Board, Tony Castaldo, sits down with Nicole Sweeny, Chief Commercial Officer at KalVista Pharmaceuticals. Tony and Nicole discuss KalVista’s mission and aspirations for the future health of the HAEA community. They also address EKTERLY® , a newly approved oral, on-demand HAE treatment option, and provide practical insights into KalVista’s programs for access, insurance coverage, and efforts to expand treatment options for children. Note: This podcast is for educational purposes only and is not meant to provide medical advice. The HAEA is company- and product neutral. We don’t endorse specific therapies and we don’t compare products. Treatment comparisons and selection are the sole responsibility of people with HAE and their physicians. For more information, please visit www.haea.org . Sponsored By: KalVista Pharmaceuticals

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  HAE Speaks

  Perspectives from a Mother and Daughter with HAE

  May 8, 202627 min

  In this episode of HAE Speaks, Cheryl and her daughter Leah share their powerful journey living with hereditary angioedema (HAE) across generations. Together, they open up about navigating diagnosis, managing life with HAE, and the unique perspective of both a parent and child living with the condition. They also highlight the importance of advocacy, both within the healthcare system and the broader community, and offer insight into how others can get involved, raise awareness, and make a meaningful impact. Sponsored by: BioCryst Pharmaceuticals

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  Episode #62

  Supporting Adult Scholars in the HAE Community: Tina's Story

  Feb 26, 202631 min

  In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship. Tina shares her journey, the impact of the scholarship, and how educational support can make a difference for individuals affected by HAE, regardless of age or stage of life. Learn more about the HAEA Scholarships by visiting: https://www.haea.org/pages/p/scholarships Thank you to our 2026 sponsors: BioCryst, CSL Behring, IONIS Pharmaceuticals, and Takeda.

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