Just Listen: Voices of PK Deficiency Podcast

Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended forpatients, caregivers, providers, and the greater community of people who are impacted by PKdeficiency. Each episode of the Just Listen podcast strives to provide listeners with criticaleducation, the latest scientific updates, and voices from the PK deficiency community. Learnmore about PK deficiency by visiting KnowPKDeficiency.com or connect withKnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join an inclusive community and buildconnections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. VisitAgios.com to learn more.This podcast is intended for informational and educational purposes only and is not intended asmedical advice. Please speak with your healthcare professional before making any treatmentdecisions.

Just Listen: Voices of PK Deficiency Podcast is a health podcast hosted by Unknown Host, with 37 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Unknown Host hosts Just Listen: Voices of PK Deficiency Podcast, a health show with 37 episodes published.

Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.

• 

  Episode #36

  Learnings from the Red Cell Revolution

  Feb 28, 202631 minS1

  <p >This special crossover episode brings together advocates from PK deficiency, thalassemia, and sickle cell disease to share insights from the Red Cell Revolution and the powerful connections formed across rare hemolytic anemias. NinaMaria Badalamenti leads a heartfelt conversation with Jill Welle, Laurice Levine, and Cassandra Trimnell about the common challenges these communities face, from fatigue to stigma to navigating complex care. Together, they explore how collaboration, shared education, and collective advocacy strengthen each individual movement. The episode offers hope, perspective, and a reminder that these rare-disease communities are stronger together.</p> <p> </p> <p >SHOW DESCRIPTION</p> <p >Thal P...

  ListenShow Notes
• 

  Episode #35

  Replay: PKD International Guidelines

  Dec 1, 202538 minS1

  <p >On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation  to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the importance of these guidelines in providing standardized care, especially in regions lacking specialized hematologists, and the role of patient and caregiver perspectives in their development. Topics covered include the challenges of managing PKD without guidelines, the comprehensive approach taken to create the new guidelines, and the i...

  ListenShow Notes
• 

  Episode #34

  Replay: Iron Overload with Dr. Sujit Sheth

  Oct 29, 202532 minS1

  <p >On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You'll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as well as the importance of managing and monitoring iron overload.</p> <p> </p> <p >SHOW DESCRIPTION</p> <p >Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD.  Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the la...

  ListenShow Notes
• 

  Episode #33

  Regular and Non-Regular Transfusions in PK deficiency

  Aug 22, 202539 minS1

  <p >Join Dr. Rachael Grace as she interviews Dr. Eduard van Beers, a leading expert in rare anemia including Pyruvate Kinase (PK) deficiency. They discuss the clinical challenges, benefits, and complications associated with transfusions for PK deficiency, underscoring the importance of personalized care and international collaboration for optimizing patient outcomes.</p> <p >For more information on the International Guidelines for the Diagnosis & Management of Pyruvate Kinase Deficiency: https://pkdguidelines.org/</p> <p> </p> <p >SHOW DESCRIPTION</p> <p >Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended for patients, caregivers, providers, and the g...

  ListenShow Notes
• 

  Episode #32

  Monitoring & Management of Chronic Complications in PK Deficiency

  Jun 25, 202540 minS0

  <p >On this episode of Just Listen: Voices of PK Deficiency, host Dr. Rachel Grace interviews Dr. Andreas Glenthøj, a hematologist from Copenhagen University Hospital, about his journey into genetic red blood cell disorders and the latest international guidelines for managing PK deficiency. They discuss various complications like iron overload, bone density issues, and pulmonary hypertension, along with the importance of proactive screening to improve patient outcomes.</p> <p> </p> <p >For more information on the International Guidelines for the Diagnosis & Management of Pyruvate Kinase Deficiency: https://pkdguidelines.org/</p> <p> </p> <p >SHOW DESCRIPTION</p> <p >Just Listen: Voi...

  ListenShow Notes

Recent guests on Just Listen: Voices of PK Deficiency Podcast. Study who booked and why before you pitch.

Based on semantic analysis of episode topics and host coverage, this show is a strong guest fit for executives in:

Industry fit is computed by PitchCentric using vector embeddings of the show's episode catalog.