
Episode #123
NANCY TREASTER: Frontotemporal Dementia And The Fight For Clarity
What happens when you know something is wrong, but no one believes you? In this heartfelt episode of Love Conquers Alz , Susie Singer Carter and Don Priess welcome Nancy Treaster , co-founder of The Caregiver's Journey , to discuss her husband, Kim Treaster's battle with Frontotemporal Dementia (FTD) and the long road to an accurate diagnosis. Nancy is a certified caregiving consultant and co-founder of The Caregiver’s Journey, Nancy shares the subtle behavioral changes that first raised concerns, the frustration of being told it was "just anxiety," and why caregivers must trust their instincts when something doesn't feel right. Together, they explore the differences between Alzheimer's disease and Frontotemporal Dementia, the challenges of language loss (primary progressive aphasia), and the importance of advocating for a loved one when the medical system falls short. The conversation also dives into some of the most emotional aspects of caregiving: • Recognizing the early signs of FTD • Why spouses and family members often notice symptoms first • How to advocate for an accurate diagnosis • Protecting your loved one's dignity throughout the disease • Navigating aggression, incontinence, and difficult behaviors with compassion • What it means to become a "pragmatic caregiver" and find peace in the present moment • Why love can endure, even when memories fade Nancy's wisdom reminds us that while dementia changes relationships, it doesn't erase love. If you're caring for or walking beside someone living with FTD or any dementia diagnosis, this conversation will leave you feeling seen, supported, and inspired. * The short film mentioned in the podcast: Love At First Sight starring British actors Sir John Hurt and Phyllida Law Send us Fan Mail If someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change. History has shown us that It takes people power to change anything worthwhile. That’s why we we’re launching something that’s never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We’r Support the show No Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime ( https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform ! Found out more here: https://www.roar4ltc.org/roar-2026-walk Follow us on Twitter , FB , IG , & TiK Tok Listen on your favorite platform If you like what you hear leave us some love .






