MitoAction Expert Series

Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts

MitoAction Expert Series is a science podcast hosted by MitoAction, with 100 episodes on record and a Required Pod Score of 80.

MitoAction hosts MitoAction Expert Series, a science show with 100 episodes published.

Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.

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  MitoAction Expert Series

  NARP: Understanding the Spectrum of Disease

  Sep 14, 20261h 7m

  NARP (Neuropathy, Ataxia, and Retinitis Pigmentosa) is a mitochondrialdisorder with a broad and variable clinical spectrum that can affect the nervous system, vision, movement, swallowing, cognition, and energy. This talk will explore the history and genetics of NARP, how genetic confirmation informs diagnosis and care, and how symptoms such as ataxia and energy impairment can manifest in ways that are often misunderstood. We will also discuss current approaches to symptom management, multidisciplinary care, and the evolving treatment landscape for individuals living with NARP.

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  MitoAction Expert Series

  Understanding the FALCON Study: Investigating a Potential Therapy for Mitochondrial Disease

  Sep 3, 20261h 6m

  This presentation will dive deep into the “Falcon Study” to explain what this study is, who qualifies, the mechanism of action of the compound being studied, and how its efficacy is measured.

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  MitoAction Expert Series

  Understanding the potential of a “CPK Meter”

  Sep 3, 202656 min

  IVDS is a biotech company developing a CPK meter called, CPK Now. This small, handheld device will allow patients to check their creatine kinase (CK) level quickly from a fingerstick sample, so they and their care team can react sooner and monitor their care more effectively. This presentation will discuss the science behind the technology, how this meter could be used, where the research/development currently stands, and what the pipeline could look like.

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  MitoAction Expert Series

  Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails

  Sep 3, 20261h 11m

  As the incidence of mitochondrial disease continues to rise, patients having a better understanding surrounding their therapies remains critical. Compounding pharmacies play a key role in simplifying medication regimens while providing affordable options. This presentation will explore the importance of compounding pharmacies while highlighting how ACHC rare disease accredited compounding pharmacies employ clinical teams that support both patients and clinicians during their treatment journey.

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  MitoAction Expert Series

  Lactic Acid & Mitochondrial Disease: When there’s too much of a good thing

  Sep 3, 20261h 8m

  Lactic acid is an essential metabolite in our body, helping move energy from tissues that generate it, to the tissues that need it the most. We will talk about what lactic acid is supposed to do and how that gets dysregulated in mitochondrial disease. Objectives include naming causes of high lactate, evaluating lactate metabolically & listing downstream impacts of high lactate.

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