MSwired.podcast
How Your Story Is Shaping MS Research with Dr. Robert Fox of NARCOMS E18
Episode 18: August 5, 2026: Did you know that your experience living with multiple sclerosis can help shape the future of MS research? In this episode of MSwired, Selena sits down with Dr. Robert Fox, Managing Director of NARCOMS (the North American Research Committee on Multiple Sclerosis Registry), to discuss one of the world's largest and longest-running MS registries. We explore what NARCOMS is, how it differs from a clinical trial, and why the experiences of people living with MS are so valuable to researchers. Dr. Fox explains how patient-reported data has helped advance our understanding of MS, from symptoms like fatigue and cognitive changes to quality of life and long-term outcomes. Whether you're newly diagnosed or have been living with MS for years, this conversation highlights how your voice can contribute to meaningful research and help improve care for future generations. In this episode, you'll learn:• What NARCOMS is and why it was created• How participating differs from joining a clinical trial• How patient experiences drive real-world MS research• Why every person living with MS has a story worth sharing• How to get involved with the NARCOMS Registry If you enjoyed this episode, please subscribe, leave a review, and share it with someone in the MS community. Together, we can continue raising awareness, advancing research, and empowering those living with MS.
