
My Hero 360
2’10” and Ready to Conquer the World | Robert and Monica Quarles
In this episode, Kerri Fitzgerald sits down with Monica and Robert Quarles, who share their daughter’s journey with Alagille syndrome. Upon welcoming Miracle to the world following an IVF journey, Monica and Robert knew something wasn’t right. Six weeks later, they finally had an answer, but the journey was just getting started. Monica and Robert discuss the emotional, financial, and physical challenges that they and Miracle have faced. Their experience highlights the importance of trusting your gut, finding support, and never giving up. In the video, Miracle, now 3 years old, also makes an appearance, shyly showing the world her infectious smile. Developed in partnership with the Alagille Syndrome Alliance, this episode shines a light on the realities of parenting a child with a rare condition. Key Highlights: Hear how Monica and Robert Quarles navigated feelings of dismissal from the medical community before reaching a diagnosis for their daughter, Miracle. Be inspired by Monica and Robert’s determination to spread awareness and education for Alagille syndrome, while being a voice for their daughter’s story. Hear how Monica and Robert's fierce advocacy allowed Miracle to get the liver transplant she desperately needed. Learn about how community, such as the Alagille Syndrome Alliance, has made an impact on the family’s ability to navigate this chronic health journey. 00:00 Introduction & Background 02:08 A Mother’s Intuition 09:20 Meet Miracle! 10:15 Rare Conditions Impact the Whole Family 18:10 Finances and Faith 23:13 Miracle’s Life Now: Advocating for Her Life and Future 47:49 Advice to Younger Selves 48:57 Closing Remarks Connect with the Alagille Syndrome Alliance: https://alagille.org/ https://www.linkedin.com/company/alagille-syndrome-alliance https://www.instagram.com/algsalliance/ https://www.facebook.com/ALGSAlliance/ About My Hero 360: At My Hero 360, we honor, celebrate, and connect heroes worldwide. By sharing their stories, we aim to inspire and provide hope for humanity. Follow us to hear more incredible stories of unsung heroes who make a difference in the world. Support My Hero 360: https://myhero360.com/ https://www.instagram.com/myhero.360/ https://www.tiktok.com/@myhero.360 Listen to Our Heroes’ Stories: Apple Podcasts: https://podcasts.apple.com/us/podcast/my-hero-360/id1870681068 Spotify: https://open.spotify.com/show/1LnJ9ce28OkweYcopCZx2L?si=ae174fd84ef44334 Amazon Music: https://music.amazon.com/podcasts/aa426e78-fb79-4978-8851-d5aab25cf951/my-hero-360






