National Disability Radio
Public Policy Pod: Putting the FUN in funding
Video Version: What does it actually mean when disability advocacy is “level funded”? What are federal appropriations, and why are they such a big deal for disability rights? On this episode of National Disability Radio , Alden Blevins (Communications Manager), Stephanie Flynt McEben (Public Policy Analyst), and Eric Buehlmann (Deputy Director for Public Policy) pull back the curtain on the federal funding process and what it means for the Protection and Advocacy (P&A) network. They discuss the successful FY26 funding fight, why advocacy on Capitol Hill matters, and how everyday people can help. You also get the added bonus of hill-day survival tips, advocacy myths and truths, and a very important debate about coffee and tea. Transcript: Alden Blevins: Hello, and welcome to National Disability Radio. I am here today with two wonderful people who are about to introduce themselves. I am Alden Blevins, Communications Manager here at NDRN. I have my own lived experience with disability and I’m really glad to be here today. What about you guys? Who are you, What do you do? Stephanie Flynt…: Yeah, I’m Stephanie Flynt McEben. I am also one of your hosts of the podcast and NDRN’s Public Policy Analyst. And I have beef with a music streaming app, and I’m not going to talk about which one, but let’s just say that this [00:00:30] music streaming app told me that I was 67 for Christmas this year. And then it had the audacity to… Oh gosh, what was the playlist the other morning that was recommended? It was Old Camping Man Sunday Morning, and it was really weird. Why? I don’t listen to old camping man music unless James Taylor and Chappell Roan and Taylor Swift count as that. But anyway, hope everybody else is having a good day. And hey, if Spotify thinks [00:01:00] you’re old, you’re just… I don’t know. You’re young at heart, anyway. Alden Blevins: I think it clocked my age exactly. And I must say that I listened to a lot of Lady Gaga and Kesha in the last year. Stephanie Flynt…: Yes. Alden Blevins: And to be fair- Stephanie Flynt…: You were in the 2010’s era. Alden Blevins: They were still the two most popular artists when I was graduating from high school, so they clocked me. They clocked me for sure. Stephanie Flynt…: Oh my gosh. Time to introduce Eric, who is our Deputy Executive [00:01:30] Director for Public Policy. How are you doing? It’s great for you to be here. Eric Buehlmann: Great, it’s wonderful to be here. Evidently, your phone must be listening to my music then in that way [inaudible 00:01:44] Stephanie Flynt…: Maybe so. I don’t know what’s going on, but I don’t know how I feel about it. And also, I guess… I don’t know. I guess the Spotify age thing is eclectic because my top artist was Taylor Swift, so I don’t know. Anywho. Eric Buehlmann: So I’m Eric Buehlmann. I’m the Deputy Executive [00:02:00] Director for Public Policy. As Stephanie said, my first choice is not Taylor Swift, but my wife listens to it a lot. So when I’m in the car with her, that’s what I’m listening to. Alden Blevins: This is National Disability Radio. We are the official podcast of the National Disability Rights Network. The National Disability Rights Network works in Washington DC and around the country on behalf of the protection [00:02:30] and advocacy systems, the P&As and the client assistance programs or CAP. We are the nation’s largest provider of legal advocacy services for people with disabilities. The first thing we want to talk about is some big and good news. The P&A network was funded for the rest of FY26. Can we get a hallelujah? Stephanie Flynt…: Yay, woo-hoo! Alden Blevins: The first thing I was just going to ask is, Eric, can you explain to us why it’s a big deal that we were funded and level funded, [00:03:00] and kind of what it took for us to get to this point? Eric Buehlmann: In terms of being able to, why we were able to do this, it’s really our members reaching out to all the representatives, all the senators, making the case, all the good work that the P&As and the CAPs do, and showing all the examples and saying, “Look, if you don’t fund us, this is what’s going to happen, is that person with a disability is not going to be able to get accessible housing or accessible transportation, or the student’s going to be able to go to school or someone’s going to have an assistive [00:03:30] technology device or rampant abuse and neglect are going to be occurring in either the community or institution.” So they made those cases. Congress said, “We agree with you.” And the best we could hope for at this time was at least maintaining our funding and not losing it. Alden Blevins: I think it’s really important to remember that this is not just numbers on a spreadsheet, this has real world impacts on peoples’ lives, the lives of people with disabilities, whether or not they can access enforcement of their civil rights, so [00:04:00] super important. Stephanie Flynt…: Absolutely. Alden Blevins: Just to peel back the curtain and give a little more context for some of our listeners, I just want to go ahead and ask the kind of general question of what are federal appropriations and what does that really mean when we talk about them? Stephanie Flynt…: Yeah, sure. I’m happy to jump in a little bit here. Essentially what federal appropriations are is how Congress allocates funding. And so essentially, there is a long process as Eric kind of talked through a little bit [00:04:30] earlier, in terms of everything that’s been going on with the budget. And so individuals are able to make various appropriations requests to their office. But essentially in a nutshell, it’s essentially just how we get the funds that we need in order to do the work that we do. Alden Blevins: And just kind of practically, what are the steps in an appropriations process or what can people kind of expect out of appropriation season? Oh Stephanie Flynt…: Oh my goodness. Okay, so usually, [00:05:00] of course in the spring, we usually see a big influx of appropriations forms, which, we’re starting to kind of see that now with the House setting their committee deadlines for appropriations, so we’re starting to kind of see an influx of that now. In the Senate, we’ll probably see that a little bit later on as that comes down. But usually the offices will set their personal deadlines, their committee deadlines. And then the appropriations bills, just kind of depending on where they sit, which, all of ours sit on the subcommittee for Labor, [00:05:30] Health and Human Services, Education and related agencies on both the House and the Senate side on the Appropriations Committee. And so there will be a House markup usually around June, as well as a Senate markup in July with the hope that we are able to go ahead and pass the appropriations, the funding that we need for the next fiscal year that starts on October 1st. Alden Blevins: My next one is just why do you guys think advocacy on Capitol Hill matters [00:06:00] during appropriation season? The regular person might not realize how important this is and why. Stephanie Flynt…: Yeah. In my experience, like you said, Alden, a lot of people don’t realize how important and how crucial that kind of advocacy is. But really and truly, that kind of advocacy is what helps us acquire our funding for services, particularly advocacy. So it’s definitely super important to be continuing to follow up with your members. Of course, meeting with your members if you can, [00:06:30] and their staff. Having a steady contact in their offices, things like that. And even just building those relationships in my viewpoint is a good form of advocacy and just making sure that they know who you are, they know what your programs do. They know how it benefits folks in their state/district, et cetera, et cetera, the constituency that they serve. So just making sure that, those points. Eric Buehlmann: And the specific, the biggest requirement is staff [00:07:00] are always seeking information. You’re covering hundreds of programs, multiple issues. They don’t know everything that is going on. They can’t track everything at the same time because they just have information overload. So putting a face with a person, with the story, with the request in front of them makes the biggest difference, because then the staff begins to know who you are. But otherwise, they’re just overloaded with how much material they’re trying to cover and how much stuff they’re trying to do. And if you’re not in front of them, I mean, as [00:07:30] it’s basically said, if you’re not talking to them, you’re on the menu, you’re not the one that’s providing them the information. Stephanie Flynt…: You’re not at the table, you’re on the menu, yeah. Alden Blevins: That makes a lot of sense to me. I was also just going to ask, we’re all so excited and grateful that we were level funded for FY26, but what does level funding really mean? What has that looked like over the last couple years? And having that level or that stagnant funding, what does that mean in terms of the [00:08:00] P&A’s services or the take home impact? Eric Buehlmann: It’s difficult for the P&As because level funding really is in a way, a kind of a cut. Costs are going up continually, healthcare costs are going up. Cost of travel, cost of everything is going up. So level funding ultimately means that they’re able to do less or they may need to shift from doing as much individual case work to more systemic work where you’re helping multiple people by solving one problem. [00:08:30] So level funding is great, especially when you’re facing the potential of cuts. But ultimately if you do that for many, many years, it ultimately means that the P&As and the CAPs will have less staff and able to serve less people. Alden Blevins: Now that we’ve kind of grounded ourselves in a little bit of how this process works, we’re going to talk about the larger policy landscape that we’re all living in right now. What are some of the disability policy concerns we saw come to a head in 2025 and how do we think [00:09:00] that might influence our policy landscape for the rest of 2026? Stephanie Flynt…: Oh my goodness. Do you want to start or do you want me to? Eric Buehlmann: You go first. Stephanie Flynt…: Oh, goodness. I think for me, the biggest thing that comes to mind is the dismantling of the Department of Education. We’ve definitely seen different things that have kind of gone ahead in that regard. And so obviously, there’s a lot of different concerns that are there in those types of things. And so [00:09:30] just continuing to monitor that and what all of that looks like. Of course, I’ll leave a little bit of the healthcare stuff to Eric since that’s more of his specialty, but of course, that is something that I would be remiss not to mention. The various concerns around the Medicaid work requirements that will be taking effect and how that’s going to impact our community. So there are definitely a lot of different policies and a lot of different things that you don’t think about necessarily intersecting with [00:10:00] the disability community, but that are still having impacts on the disability community, particularly those who are members of multiple marginalized communities. Eric Buehlmann: I think building on that for Stephanie is, it’s not just the Medicaid work requirements that are going to hit people. It’s just the massive amounts of cuts to the amount of funding that the states are getting. It’s sort of a partnership between states and the federal government. And if the federal government cuts their share of funding, it means states are going to be cutting their share of funding. And what those cuts [00:10:30] really mean in the long run is that unfortunately, not required services or waiver services are going to be the ones that are going to get hit. If they have to do it, the state will pay for it. If they don’t have to do it and the state’s not willing to put up the money, then those services are going to go away. And in our case, that means home and community-based services for the most part. So not only are a number of people going to get kicked off of Medicaid because they’re having problems following the work requirements or understanding [00:11:00] what the work requirements are and/or having to go through getting re-certified every six months rather than every year, that’s going to mean more people are going to be kicked off. On top of it, you add in all the cuts and the states are going to look around and say, “Well, we’re losing $1 billion,” let’s say, in California, I think is the number they said. “How are we going to make up that gap?” And what they’re going to do is they’re going to say, “Well, these are required and required in the Medicaid program is institutionalized care versus [00:11:30] the ones that we choose to do on our own, which is home and community-based services. Well, if we have to do it, we’ll have to pay for it.” And that means there’s a gap and that gap is going to come out of home and community-based services. Alden Blevins: Yeah. And I think this is kind of a great connection to that home and community-based services piece. I was going to kind of ask, generally speaking, what themes might we be seeing in Congress right now that could affect P&A programs or disability justice as a whole? Eric Buehlmann: I do think one issue [00:12:00] that we’re encountering is more and more members that may not understand disability as well, or what the desires of people with disabilities are, and may listen to not just the person with a disability, they may be listening to their guardians or they may be listening to their parents. Not saying that they don’t know what the person with a disability wants, but if you want to go to the source, the source is the person with a disability. So I think one of the themes, and I think this is why it’s critically important for people with disabilities to be involved in these discussions and [00:12:30] doing this advocacy, is you’ve got to put yourself front and center. And you have to say, “This is what I desire, this is what I want. I want to live in the community, I want to live at home. I want to be able to work in an integrated environment. I don’t want to be paid subminimum wage.” And if they’re not hearing from people with disabilities about that, then that’s a problem. And I think what we’re seeing is sort of a return to sort of the old way of thinking, sort of pre-IDEA, pre-ADA. And people with disabilities should be [00:13:00] off to the side and not at the forefront. And so I think that theme is carrying over in a lot of the ways Congress and the administration are looking at these issues. And I think in terms of other themes, it’s, “We got to save money somewhere.” And their ideas of trying to save money is to cut programs, which actually in the long run, costs more. It costs more to be served in an institution than it costs to live and get served in the community. And [00:13:30] so we’ve really got to be making those cases. I think those are two themes that I’m thinking of. Stephanie Flynt…: Yeah, for sure. And I think that another theme really is just broader justice in the civil rights community, just not completely and fully understanding disability. And so I definitely think that if we’re not careful with everything going on, we definitely could regress back a little bit more into the medical model as opposed to the social model. And I think that some of the demonstration in the legislation [00:14:00] that could potentially be introduced, and of course that we are closely monitoring and making sure that we’re continually keeping an eye out. And of course, we’ll keep folks in the network apprised of those things. But all that to say, I think that’s kind of a demonstrated action when it comes to their understanding of what disability is. Alden Blevins: I love what you guys said, especially about people with disabilities being front and center and telling their own stories and determining, [00:14:30] telling the world what they really want and seek out in their lives. I think that that’s so important for people with disabilities to be in the driver’s seat. For those of you who don’t know, we do have a saying in the disability community that is, “Nothing about us without us.” So kind of speaking about some of the messages that have been happening in the last year, we know that a lot of things have become very polarized throughout the last year, 2025. What opportunities do you guys see for collaboration towards [00:15:00] a better future for people with disabilities? What efforts might be a good target for bipartisan support? Stephanie Flynt…: Yeah. I think for me, definitely always on the hunt for bipartisan opportunity. Because the truth of the matter is that disability, even though it is being portrayed as a partisan issue, it’s not a partisan issue. It’s a nonpartisan issue. And so just kind of keeping that in mind as we continue to do this policy work. I think [00:15:30] what it boils down to really, at least a part of it, is messaging. Because looking at the issues that are in the disability community, because they’re nonpartisan, I think that really, it comes down to it’s not about what you’re saying, it’s how you’re saying, it’s how you’re presenting it. When we’re talking to different offices, we want to emphasize different things that they are most concerned about or that may matter most to their particular constituency or the folks [00:16:00] with disabilities that they may serve. Those would be my things, but I definitely, even though it can be challenging at times, definitely just continuing to keep hope there. Eric Buehlmann: I mean, there’s always a lot of different things. And as Stephanie said, you have to sort of tailor your message around what people are interested in. I mean, things like the Transformation to Competitive Integrated Employment Act, I think there’s a large number of people, and we’ve seen it in the states, they’re phasing out the subminimum wage, even in some [00:16:30] very conservative states. And so that’s something that’s garnered bipartisan support, that people should be paid at least the minimum wage for the work they’re doing. And that they should be integrated into the employment environment and not just in segregated workshops. We were able to get a Republican co-sponsor for the Keeping All Students Safe Act this year, which would place some kind of federal restrictions on the use of restraint and seclusion in schools and provide money for [00:17:00] training, which is critically important so that the teachers know and the school personnel know what they do when they’re encountering tough situations. There’s a number of bills. I mean, ultimately disability is very bipartisan and it impacts everybody. So usually whether you’re a Republican, a Democrat or Independent, you either have a family member or know someone very close to you that has a disability. So you just got to f
