On the tip of my tongue - talking about Aphasia

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia: Jonathan's Experience with Aphasia 1. Initial Incident: In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help. 2. Medical Emergency: He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia. 3. Impact on Daily Life: - Jonathan struggled with basic tasks such as speaking, reading, and writing. - He had memory issues, recalling only his postcode but not his full address or other personal information. - He faced challenge

On the tip of my tongue - talking about Aphasia is a society podcast hosted by Jonathan Hirons and Rob Edwards, with 37 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Jonathan Hirons and Rob Edwards hosts On the tip of my tongue - talking about Aphasia, a society show with 37 episodes published.

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  Episode #6

  Empowering Voices: Dyscovering Aphasia Journeys

  Jul 23, 202639 minS4

  Send us Fan Mail Long-Term Aphasia Support with Dyscover: Conversation Groups, Recovery, and Awareness Hosts Rob Edwards and Jonathan Hirons introduce their podcast follow-up to Hirons’ film on aphasia, a language impairment often caused by stroke or brain injury, affecting speaking, reading, writing, and texting; they note 350,000 people in the UK have aphasia and awareness is low. After an ad inviting sponsorships, they speak with Dyscover charity staff Julie Samuel and Caroline McDonald, plus members Sarah, Neil, and Deena. Dyscover, founded over 30 years ago, provides long-term, facilitated conversation groups (in-person and online) for about 100 members and families. The members describe their strokes and varied recovery, ongoing challenges like fatigue and noise, and how Dyscover’s patience, practice, friendships, ambassador talks, research/training roles, and activities support confidence, identity, and life participation; they discuss patchy access, funding limits, and joint awareness efforts through the Aphasia Alliance. 00:00 Podcast Welcome 00:30 What Is Aphasia 01:09 Sponsor Message 02:16 Meet Dyscover Team 03:34 What Dyscover Does 05:48 Members Stroke Stories 06:20 Sarah Living With Aphasia 08:39 Neil Recovery Journey 11:06 Deena Progress And Challenges 13:46 Long Term Support Gaps 18:39 How Dyscover Helps Members 22:05 Neil As Ambassador 23:59 Editing Skills Return 24:40 Back at BBC Freelance 24:48 Deena Finds Support 26:28 Future of Discover 28:12 Online Groups Reach 30:36 Government Awareness Gap 31:24 Ambassadors Long Term Support 36:30 Deena Cycling Story 38:09 Closing Thanks and Resources Dyscover webside: https://dyscover.org.uk Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

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  Episode #5

  Reimagining Creativity After Stroke with Dr. Jess Johansson

  Jun 19, 202628 minS4

  Send us Fan Mail Creativity, Hope, and Life After Stroke: Supporting People with Aphasia Beyond Rehab Hosts Rob Edwards and Jonathan Hirons introduce their “On the Tip of My Tongue” podcast, a follow-up to Jonathan’s film about aphasia, a brain-injury condition often caused by stroke that affects language in speaking, writing, reading, and texting; they note 350,000 people in the UK have aphasia yet public awareness is low compared with Parkinson’s. Guest Dr. Jess Johansson , a senior stroke researcher at the University of Leeds/Bradford Institute of Health Research, discusses her 13 years in stroke research and a planned NIHR fellowship application to integrate creative approaches into stroke care and extend support after services end. She describes using crafts like vision boards in stroke groups to promote relaxation, hope, and meaningful activity, emphasizing neuroplasticity and recovery beyond assumed plateaus. The conversation covers fragmented care, the value of groups and social connection, inclusion of people living alone or from deprived backgrounds, shifting away from deficit-focused models, engaging GPs, and raising aphasia awareness through public-facing art exhibitions. 00:00 Creativity After Stroke 00:25 Podcast Intro And Aphasia 01:22 Meet Dr Jess Johansson 02:00 Creative Care Fellowship Plan 03:28 Why Creativity Helps 05:04 Whole Person Recovery 07:16 Research With Stroke Groups 10:12 Access And Inequality 12:01 Living Alone And Support 13:28 Mental Health Adjustment 15:50 Recovery Beyond Plateau 19:43 GPs And Deficit Model 23:01 Raising Aphasia Awareness 25:47 Closing Thoughts And Thanks 26:42 Resources And Community http://www.linkedin.com/in/dr-jess-johansson-091923383/ Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

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  Episode #5

  Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future

  Jun 8, 202626 minS4

  <p>Send us Fan Mail</p><p><b>Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future</b><br/><br/>During Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective, discussing how aphasia is treated as a secondary condition, its “quiet crisis” impact on identity and family life, and the need to avoid carer burnout by creating therapy-free zones. The episode de...

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  Episode #4

  Speak Up for Aphasia: A Global Awareness Campaign Update

  May 22, 202614 minS4

  <p>Send us Fan Mail</p><p><b>Speak Up for Aphasia: A Global Awareness Campaign Update</b><br/><br/>Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness Month in June 2027. Partners include the Collaboration of Aphasia Trialists for native-speaker translations, champion networks, and free hosting of assets. Th...

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  Episode #3

  Life Beyond Aphasia: Supporting Care Partners and Building a Movement

  Mar 26, 202628 minS4

  <p>Send us Fan Mail</p><p>Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via...

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