Outlook on Radio Western
Outlook 2026-05-18 - In Her Own Words With Daring Sister Laura Dattner
"When we deny the story it defines us. When we own the story, we can write a brave new ending." Brene Brown Sister/co-host Kerry found a community during Covid times known as The Daring Sisters, a patchwork of blind women from all over, in person and virtual retreats, which serve as support and connection for one another and Laura Datner (having been DS’s secretary since) was one of those women. Joining us from “the roller coaster capital,” this week on Outlook Laura from Ohio shares about her own diagnosis of RP and raising a child with Down Syndrome - from fundraising and inclusion and meeting other women and families to the medical and developmental side of life with these disabilities/conditions such as tunnel vision or a heart condition - it takes a village. Her diagnostic RP story is an example of how crudely physicians can break the news and the utter disconnect between the medical and social models of disability, like low vision/blindness compared to the social model, with connection at the forefront of organisations like Daring Sisters. We talk the start of the summer season with its ice cream, carnivals, and amusement park days - Mother’s Day and the roller coaster ride that is parenthood, and how Laura first met the creator of Daring Sisters when attending their National Ability Center in Utah, both with a shared eye condition, after being diagnosed with retinitis pigmentosa at age twenty-nine herself. Datner describes the in person activities at the NAC which include adaptive skiing, equine therapy, tandem biking, archery, and a high ropes course which Laura couldn’t take part in in 2019 down to the fact that she was pregnant with her first child at the time. Kerry and Laura share about pros and cons of in person vs virtual connections made, the collaborative experience of leisure and support group activities, and the different themed groups (gardening/parenting/book club to name a few) Daring Sisters offers including the virtual one where they first became aware of each other. Thanks to Laura Datner for opening up to us and telling us her story, in her own words, for this one on her welcome package to blindness, in contrast to the welcome package to Daring Sisters Kerry received. DS (Daring Sister) Laura and DS (The Syndrome) she advocates for with her son and the Down syndrome community. This one highlights an essential Mother’s Day message of self care along with more maternal roles since initial diagnosis/prognosis for herself and her child. For more, check out the DS: http://www.daringsisters.org

