Spotlight on Care: Alzheimer's Caregiving

Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at mwitbrac@uci.edu.

Spotlight on Care: Alzheimer's Caregiving is a education podcast hosted by UCI MIND, with 60 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

UCI MIND hosts Spotlight on Care: Alzheimer's Caregiving, a education show with 60 episodes published.

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  Episode #58

  Role Changes in Caregiving with Martin Schreiber Part 2

  Apr 20, 202618 minS1

  In this episode, Steve and Virginia speak again with Marty Schreiber about the deeper emotional side of dementia care. Marty explains why simple things like holding hands or singing are so important for staying connected with a loved one. He shares advice on how caregivers can "join their loved one's world" instead of trying to correct them, and discusses the ongoing grief that comes with the disease. Marty also reminds caregivers why it is okay—and necessary—to use humor and take time for themselves. It is a heartfelt conversation about finding peace and joy in the present moment. Send us Fan Mail

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  Episode #57

  Role Changes in Caregiving with Martin Schreiber

  Mar 17, 202621 minS1

  In this episode, Steve and Virginia speak with former Wisconsin governor, author and Alzheimer’s advocate Marty Schreiber about his personal caregiving journey with his wife, Elaine, who lived with Alzheimer’s disease. Marty shares how the experience transformed his life and led him to become an advocate for caregivers. Drawing from both heartbreak and wisdom, he reflects on the physical and emotional realities of caregiving and the importance of approaching dementia with compassion and understanding. Marty wrote a book titled, My Two Elaines , about his experience caring for his wife through Alzheimer’s. Send us Fan Mail

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  Episode #56

  Approach to Elder Law with Fay Blix

  Feb 11, 202631 minS1

  In this episode, Steve and Virginia speak with elder law attorney Fay Blix about the critical importance of early legal planning after an Alzheimer’s diagnosis. Fay explains how stigma, fear, and denial often delay planning, and emphasizes involving the diagnosed person in decisions while they still have capacity. She outlines key tools such as durable powers of attorney, advance healthcare directives, and POLST forms, stressing that documents should be clear, personalized, and regularly updated. Fay also discusses the emotional and logistical challenges families face, the value of open communication and defined roles, and why conservatorship, though sometimes necessary, can be costly and intrusive. Her core message: proactive legal planning helps protect dignity, reduce stress for caregivers, and ensure a person’s wishes are honored as the disease progresses. Send us Fan Mail

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  Episode #55

  Being Patient with Deborah Kan

  Jan 16, 202636 minS1

  In this episode of Spotlight on Care , hosts Virginia Naeve and Steve O’Leary are joined by Deborah Kan, the founder of Being Patient , a leading digital resource for Alzheimer’s and dementia information. Drawing from her personal experience as a caregiver and her background as a journalist, Deborah explains how her platform serves as a comprehensive roadmap for families through three core pillars: demystifying complex research, hosting live "Brain Talks" with medical experts, and sharing authentic first-person stories to reduce stigma. The conversation also explores innovative tools available on the site, such as interactive diagnostic guides and AI-powered "Care Bots" designed to provide immediate support. To learn more about Being Patient and access these resources, click on this link here: https://beingpatient.com/ . Send us Fan Mail

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  Episode #56

  Celebrations and Holidays

  Nov 19, 202521 minS1

  This special holiday episode of Spotlight on Care offers practical, compassionate guidance for planning celebrations with loved ones living with Alzheimer’s or other dementias. Co-hosts Virginia and Steve share personal stories and helpful tips for creating calm, meaningful gatherings—from keeping events small and familiar to preparing guests in advance. They discuss the value of routines over traditions, involving the person with dementia in simple activities, and recognizing signs of stress or fatigue. The conversation encourages caregivers to slow down, adjust expectations, and focus on joy in the moment. Send us Fan Mail

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