The CFRI CF Community Voices Podcast

CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.

The CFRI CF Community Voices Podcast is a health podcast hosted by Unknown Host, with 100 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Unknown Host hosts The CFRI CF Community Voices Podcast, a health show with 100 episodes published.

Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.

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  Episode #531

  Updates on Phage Therapy to Treat CF Pathogens — Daria Van Tyne, PhD (Audio)

  Aug 11, 202621 min

  Phage therapy is an emerging area of research that offers people with cystic fibrosis (CF) a promising new approach to treating multidrug resistant infections beyond traditional antibiotics. In this podcast, CFRI-funded research, Daria Van Tyne, PhD, explains the science behind phage therapy, shares case examples of its use in people with CF, and discusses important considerations for patients and families interested in exploring this potential treatment with their care team. For more information about the University of Pittsburgh's Phage Program, visit https://dom.pitt.edu/id/research/phage/ or email phage@pitt.edu. Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95 , and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email. Funding for this CF Community Voices podcast has been provided to date by Viatris and Vertex Pharmaceuticals.

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  Episode #532

  Seeking Answers—Reflections On A Late Cystic Fibrosis Diagnosis (Audio)

  Jul 28, 202624 min

  Everyone's journey to a cystic fibrosis (CF) diagnosis is unique. For some, CF is identified before birth or through newborn screening. For others, the path to diagnosis is much longer, marked by years of unanswered questions, misdiagnoses, and uncertainty. In this podcast, four adults with CF share their personal journeys to receiving a late diagnosis. Reflecting on their experiences from childhood to the present, they describe how their CF-related symptoms were repeatedly attributed to other conditions, the challenges and medical trauma they faced, and the persistence that ultimately led them to the answer they were seeking. Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95 , and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email. Funding for this CF Community Voices podcast has been provided to date by Bruker Biomedical Systems, Viatris, and Vertex Pharmaceuticals.

  ListenShow Notes
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  Episode #533

  Seeking Answers—Reflections On A Late Cystic Fibrosis Diagnosis (Video)

  Jul 28, 202624 min

  Everyone's journey to a cystic fibrosis (CF) diagnosis is unique. For some, CF is identified before birth or through newborn screening. For others, the path to diagnosis is much longer, marked by years of unanswered questions, misdiagnoses, and uncertainty. In this podcast, four adults with CF share their personal journeys to receiving a late diagnosis. Reflecting on their experiences from childhood to the present, they describe how their CF-related symptoms were repeatedly attributed to other conditions, the challenges and medical trauma they faced, and the persistence that ultimately led them to the answer they were seeking. Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95 , and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email. Funding for this CF Community Voices podcast has been provided to date by Bruker Biomedical Systems, Viatris, and Vertex Pharmaceuticals.

  ListenShow Notes
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  Episode #530

  Designated a Liability: Cruising With Cystic Fibrosis — Ella Balasa (Audio)

  Jul 15, 202615 min

  Imagine going on a cruise to the sunny Caribbean, only to be told by the doctor on board that you were barred from the ship and finishing your vacation. That is exactly what happened to Ella Balasa, an adult with CF, who sought assistance from a cruise doctor whose lack of knowledge of CF led to very unfortunate outcomes. In this podcast, Ella details her story of seeking routine care while feeling unwell and how she utilized self-advocacy in the face of adversity to make sure her needs were met before and after her travels. Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95 , and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email. Funding for this CF Community Voices podcast has been provided to date by Viatris and Vertex Pharmaceuticals.

  ListenShow Notes
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  Episode #529

  Designated a Liability: Cruising With Cystic Fibrosis — Ella Balasa (Video)

  Jul 15, 202615 min

  Imagine going on a cruise to the sunny Caribbean, only to be told by the doctor on board that you were barred from the ship and finishing your vacation. That is exactly what happened to Ella Balasa, an adult with CF, who sought assistance from a cruise doctor whose lack of knowledge of CF led to very unfortunate outcomes. In this podcast, Ella details her story of seeking routine care while feeling unwell and how she utilized self-advocacy in the face of adversity to make sure her needs were met before and after her travels. Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95 , and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email. Funding for this CF Community Voices podcast has been provided to date by Viatris and Vertex Pharmaceuticals.

  ListenShow Notes

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