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General
Hosted by Unknown Host · General · PT-BR · 0 episodes
Uma Vaga Fora da Fila de Transplantes é uma série de entrevistas do JOTA que discute os impactos das doenças raras do fígado no Brasil. Os episódios abordam a colestase intra-hepática familiar progressiva (PFIC), a síndrome de Alagille (ALGS) e a colangite biliar primária (CBP), destacando os desafios enfrentados pelos pacientes e a importância de políticas públicas estruturadas e do acesso ao cuidado adequado. A série é produzida pelo Estúdio JOTA com patrocínio da Ipsen.
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Contact path
Public web form
Booking probability
36%
Guest openness
Selective
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Signup to Generate a PitchUma vaga fora da fila de transplantes is a general podcast hosted by Unknown Host, with 0 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.
Unknown Host hosts Uma vaga fora da fila de transplantes, a general show with 0 episodes published.
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Episode #2
<p>O segundo episódio da série “Uma vaga fora da fila de transplantes” reúne Genivaldo Rezende da Silva, pai de um menino de 8 meses com síndrome de Alagille, e a gastroenterologista pediátrica Elisa De Carvalho para discutir os desafios para o diagnóstico da doença genética ultrarrara e multissistêmica. A série é produzida pelo Estúdio JOTA com patrocínio da Ipsen.</p>
Episode #1
<p>O primeiro episódio da série “Uma vaga fora da fila de transplantes” reúne a paciente Valéria de Carvalho e a hepatologista Patrícia Holanda Almeida para discutir a colangite biliar primária (CBP), doença rara que afeta principalmente mulheres acima dos 40 anos. O episódio aborda a demora no diagnóstico, que pode chegar a uma década, os sintomas e os impactos na qualidade de vida. A série é produzida pelo Estúdio JOTA com patrocínio da Ipsen. </p>
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