You, Me & Muscular Dystrophy

Exploring muscular dystrophy one story at a time.Sharing the lives of the wonderful people that make up the muscular dystrophy community in my unique podcast series talking to people, their families and caregivers that live with the many forms of muscular dystrophy.If you or anyone you know would like to be involved in this podcast, I'd love to hear from you. My contact details will be in the notes below and I'm also on Instagram and Facebook under Leanne's Wheel Life.

You, Me & Muscular Dystrophy is a society podcast hosted by Leannes Wheel Life, with 18 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Leannes Wheel Life hosts You, Me & Muscular Dystrophy, a society show with 18 episodes published.

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  You, Me & Muscular Dystrophy

  You, Me & Rare Disease ep. 2 of 2

  Feb 28, 202634 minS0

  <p>You, Me & Rare Disease ep. 2 of 2 acknowledging International Rare Disease Day 28th February</p><p> </p><p>On You, Me & Rare Disease episode 2 of 2 we feature insights from Carly Findlay, OAM,  Clare Reilly and Leanne Watson.</p><p>Their personal experiences with rare diseases of LGMD, MS, Ichthyosis, and Cancer.</p><p>They emphasise the importance of awareness, community support, and the need for dedicated Rare Diseases Day to foster understanding and solidarity.</p><p> GUEST LINKS</p><p> </p><p>Carly Findlay</p><p>https://carlyfindlay.com.au/hire-me/</p><p>https://www.instagram.com/carlyfindlay/</p><p> </p><p>Cla...

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  You, Me & Muscular Dystrophy

  You, Me & Rare Disease ep. 1 of 2

  Feb 27, 202643 minS0

  <p>Welcome to You, Me & Rare Disease episode 1 of 2 – as a special breakout theme to You Me & Muscular Dystrophy to acknowledge rare diseases day 28th of February.</p><p>We begin this fabulous series with with a discussion with from Nicole Millis, CEO of Rare Voices Australia. Kathleen Benham, Kelly Berger, Avery Roberts</p><p>and Leah Alstin share personal insights on living with the rare conditions of endocrine cancer, congenital muscular dystrophy, and Frederichs Ataxia. It highlights the systemic challenges faced by rare disease patients, the importance of awareness and advocacy in rare diseases.</p><p>The following 2 episodes provid...

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  Episode #14

  Success Doesn't Need to Look Able-bodied

  Feb 14, 202634 minS0

  <p>Avery Roberts and Kelly Berger discuss with passion, humour and thoughtful insight about how they drive, dance and thrive through life with Congenital Muscular Dystrophy.We talk about adaptive driving, making dance history, mentoring, podcasting and more.Kelly and Avery have an admirable strength and energy that you can't help but be inspired by.</p><p><br></p><p>SHOW NOTES, LINKS & RESOURCEShttp://ladieslivingrare.com/wheel-talk-podcast https://www.facebook.com/TheWheelTalkPodcast/https://www.instagram.com/thewheeltalkpodcasthttps://www.youtube.com/@TheWheelTalkPodcast https://www.tiktok.com/@thewheeltalkpodcreators.spotify.com/pod/show/thewheeltalkpodcasthttps://podcasts.apple.com/us/podcast/wheel-talk-with-kelly-and-avery-podcast/id1836473324<br></p><...

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  Episode #13

  Writing as a Tool For Healing: Chris Anselmo and LGMD

  Jan 31, 202629 minS0

  <p>In this thoughtful and insightful podcast episode, we dive into the world of resilience and personal growth with the talented Chris Anselmo. Known for his articulate and vulnerable writing and public speaking on overcoming challenges, Chris shares his journey and the lessons he has learned along the way. This conversation is a must-listen for anyone looking to find strength in adversity regardless of your challenge..</p><p> </p><p>Newsletter</p><p>https://helloadversity.substack.com/</p><p> </p><p>Instagram</p><p>@hello_adversity</p><p> </p><p>Useful Links</p><p>https://www.jain-foundation.org</p><p> </p><p...

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  Episode #12

  Tugba Acisu and CMD

  Dec 13, 202529 minS0

  <p>Tugba is warm and bright person who shares how she broke out of her self-imposed bubble to live life fully and autonomously while living with congenital muscular dystrophy from birth. </p><p>She is now setting and achieving many of her goals, including travel, and discusses what travelling means to those of us who use a wheelchair as an extension of ourselves.</p><p>This conversation is well worth listening to as Tugba imparts such wisdom as not letting health challenges dictate one's dreams and passions, encouraging others to pursue their goals and to be a voice for those f...

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