Beyond the Bleeds

Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.

Beyond the Bleeds is a health podcast hosted by Hemophilia Outreach Center, with 50 episodes on record and a Required Pod Score of 80. PitchCentric scores this show on Booking Probability, Listen Score, and live audience signals refreshed every 24 hours.

Hemophilia Outreach Center hosts Beyond the Bleeds, a health show with 50 episodes published.

Our AI reads these to draft pitches. Use them as grounding for a pitch that cites a real guest and a specific topic.

• 

  Beyond the Bleeds

  Building Stronger HTCs for Better Patient Care with Angela Blue

  Aug 17, 202632 min

  Today on Beyond the Bleeds, Heather and guest co-host Erica are joined by Angela Blue, Director of Member & Community Relations with the Hemophilia Alliance, for a conversation about the important work happening behind the scenes to support Hemophilia Treatment Centers (HTCs) and the patients they serve. Angela shares the history and mission of the Hemophilia Alliance and explains how the organization works with HTCs across the country. From group purchasing and 340B pharmacy programs to legal consultation, payer relations, advocacy, and continuing education, the Alliance provides resources that help HTCs remain strong, sustainable, and focused on comprehensive patient care. The conversation also explores challenges facing HTCs today, including insurance barriers, access to specialty medications, and shortages of healthcare providers specializing in bleeding disorders. Angela shares how the Alliance is helping address these challenges while also supporting initiatives such as genetic testing, educating insurers, and advocating for the national HTC network in Washington, D.C. Finally, Angela looks toward the future and discusses how the Hemophilia Alliance is preparing HTCs for emerging therapies, changing insurance trends, and an evolving healthcare landscape. By listening to the needs of HTCs and bringing centers together to share knowledge and resources, the Alliance continues working to strengthen the comprehensive care patients and families rely on. “We focus on the business of running an HTC to make sure that HTCs are sustainable and accessible to patients for the future.” — Angela Blue This episode of Beyond the Bleeds explores: The history and mission of the Hemophilia Alliance How the Alliance supports HTCs and comprehensive patient care Insurance, payer, and access challenges facing the bleeding disorders community Advocacy, education, genetic testing, and other Alliance initiatives Preparing HTCs for emerging therapies and the future of bleeding disorder care Learn More About the Hemophilia Alliance The Hemophilia Alliance works behind the scenes to support Hemophilia Treatment Centers and strengthen care for the bleeding disorders community. To learn more about their mission, programs, advocacy efforts, and the work they are doing across the country, visit www.hemoalliance.org . Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple | Spotify | iHeart | Amazon Music | Pandora | Deezer | YouTube The post Building Stronger HTCs for Better Patient Care with Angela Blue appeared first on Hemophilia Outreach Center .

  ListenShow Notes
• 

  Beyond the Bleeds

  The College Checklist for Students with Bleeding Disorders with Tricia Delaney

  Aug 3, 202618 min

  Today on Beyond the Bleeds, Heather is joined by guest co-host Erica and HOC Nurse Coordinator Tricia Delaney for a timely conversation about preparing for college with a bleeding disorder. Using HOC’s College Prep Checklist as a guide, Tricia shares practical advice to help students confidently transition to campus life while staying on top of their health and treatment. The discussion covers everything from establishing infusion routines and ordering factor independently to connecting with campus health services, disability offices, and your Hemophilia Treatment Center. Tricia also explains why planning ahead, communicating with roommates and resident advisors, and creating an individualized health plan can make a significant difference if an emergency arises. Heather, Erica, and Tricia also talk about the importance of building independence before arriving on campus. From learning to manage medications and supplies to knowing where to seek care away from home, they offer practical tips that help students feel prepared while giving caregivers greater peace of mind. Whether you’re heading off to college for the first time, supporting a student through the transition, or simply looking for ways to build confidence and independence, this episode provides practical guidance to help make college a successful experience. “You would rather have a plan and not need it than need a plan and not have it.” — Tricia Delaney This episode of Beyond the Bleeds explores: Preparing for college with a bleeding disorder Building independence and managing your own healthcare Creating an emergency plan before arriving on campus Working with your HTC, campus health center, and disability office Tips for staying organized with medications, factor, and medical supplies Support & Resources Planning ahead can help make the transition to college safer and less stressful. Explore these resources mentioned in the episode. ???? HOC College Prep Checklist https://hemophiliaoutreach.org/college-prep-checklist/ ???? CDC Hemophilia Treatment Center DirectoryFind a Hemophilia Treatment Center near your college or anywhere in the United States: https://www.cdc.gov/hemophilia/treatment/treatment-centers.html Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple | Spotify | iHeart | Amazon Music | Pandora | Deezer | YouTube The post The College Checklist for Students with Bleeding Disorders with Tricia Delaney appeared first on Hemophilia Outreach Center .

  ListenShow Notes
• 

  Beyond the Bleeds

  It’s Okay to Not Be Okay: Mental Health and Bleeding Disorders with Robin Lambrecht

  Jul 20, 202634 min

  Today on Beyond the Bleeds, Heather and John are joined by HOC’s Behavioral Health Specialist, Robin Lambrecht, for an important conversation about the connection between mental health and bleeding disorders. Robin shares how behavioral health extends far beyond a mental health diagnosis, offering support for stress, anxiety, emotional well-being, caregiver burnout, and the everyday challenges that can accompany living with a chronic condition. The discussion explores how bleeding disorders can affect emotional health at every stage of life, from childhood through adulthood. Robin explains how chronic pain, frequent treatments, uncertainty, and social isolation can impact both patients and caregivers, while also highlighting the importance of strong support systems and meaningful community connections. The conversation also addresses the stigma surrounding mental health and why asking for help is a sign of strength, not weakness. Robin offers practical guidance on recognizing when additional support may be needed, what to expect from counseling, and simple strategies families can use to encourage open conversations about emotions and mental wellness. Whether you’re living with a bleeding disorder, caring for a loved one, or simply looking for ways to better support your mental health, this episode offers practical advice and reassurance that no one has to navigate these challenges alone. “It’s okay to not be okay. Asking for help is not a failure. I think it’s a sign of courage.” — Robin Lambrecht This episode of Beyond the Bleeds explores: The connection between mental health and bleeding disorders Recognizing stress, anxiety, and caregiver burnout Building healthy support systems and community connections What to expect when seeking behavioral health support Practical strategies for supporting emotional well-being Support & Resources Looking for additional support? Explore HOC’s Behavioral Health Services , learn about upcoming HOC events and programs , connect with your local Hemophilia Treatment Center , or contact the 988 Suicide & Crisis Lifeline by calling or texting 988 if you or someone you know is experiencing a mental health crisis. Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple | Spotify | iHeart | Amazon Music | Pandora | Deezer | YouTube The post It’s Okay to Not Be Okay: Mental Health and Bleeding Disorders with Robin Lambrecht appeared first on Hemophilia Outreach Center .

  ListenShow Notes
• 

  Beyond the Bleeds

  Living Life Beyond Hemophilia B: A Personal Journey with Chris Woller

  Jul 6, 202629 min

  Today on Beyond the Bleeds, Heather and John are joined by HOC’s IT Coordinator, Chris Woller, for a personal conversation about growing up with severe hemophilia B and how treatment has changed over the course of his lifetime. Chris shares his experiences navigating childhood with a bleeding disorder, the challenges of early treatment, and how advances in care have allowed him to live a full and active life. The conversation begins with Chris’s childhood, when treatment options were limited and spontaneous bleeds often meant long plasma infusions, wheelchairs, and missing out on activities many other children took for granted. He reflects on the emotional impact of growing up with hemophilia, finding confidence through music, and learning to navigate friendships while living with a chronic condition. Chris also shares the story of a life-threatening brain bleed that changed his perspective and ultimately strengthened his connection to the Hemophilia Outreach Center. He discusses how receiving care through a Hemophilia Treatment Center helped guide his treatment and why comprehensive care continues to play such an important role for people living with bleeding disorders. Finally, the group reflects on how dramatically hemophilia treatment has evolved. From fresh frozen plasma and on-demand treatment to prophylaxis and today’s extended half-life therapies, Chris offers a unique perspective as someone who has experienced these advancements firsthand. He closes with encouragement for parents and young people living with bleeding disorders, reminding listeners that while hemophilia is part of who you are, it doesn’t have to define your future. “our bleeding disorder is a part of who you are… but it doesn’t have to determine who you are.” — Chris Woller This episode of Beyond the Bleeds explores: Growing up with severe hemophilia B Early treatment with fresh frozen plasma and on-demand therapy Surviving a life-threatening brain bleed How hemophilia treatment has evolved over time Advice for parents and individuals living with bleeding disorders Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple | Spotify | iHeart | Amazon Music | Pandora | Deezer | YouTube The post Living Life Beyond Hemophilia B: A Personal Journey with Chris Woller appeared first on Hemophilia Outreach Center .

  ListenShow Notes
• 

  Beyond the Bleeds

  The Evolution of Hemophilia Treatment with Dr. Ken Friedman

  Jun 22, 202640 min

  Today on Beyond the Bleeds, Heather and John are joined by Dr. Ken Friedman from Versiti Blood Center and HOC for a conversation about the evolution of hemophilia treatment. Drawing on decades of experience in hematology and bleeding disorders care, Dr. Friedman shares how treatment has changed over time and what those advances have meant for patients and families. The discussion begins with the earliest approaches to hemophilia care, when treatment options were extremely limited. Patients often relied on rest, immobilization, blood transfusions, and supportive care while hoping bleeds would resolve on their own. Dr. Friedman explains how the development of cryoprecipitate, plasma-derived factor concentrates, and home infusions dramatically changed what was possible for people living with bleeding disorders. The conversation also examines the challenges the bleeding disorders community faced during the HIV and hepatitis crisis of the 1980s. Dr. Friedman discusses the transition to recombinant factor products, the rise of prophylactic treatment, and how these advances helped reduce bleeding complications. As treatments improved, patients were able to live more active lives and spend less time managing bleeds. Finally, the group looks toward the future of hemophilia care. From gene therapy to non-factor and rebalancing therapies, Dr. Friedman explains how emerging treatments continue to reshape care for people living with bleeding disorders. The episode highlights how far treatment has come and the progress that continues to improve the lives of patients and families. “The initial care of hemophilia was mostly watch and wait and hope that you get better.” — Dr. Ken Friedman This episode of Beyond the Bleeds explores: Early approaches to treating hemophilia and bleeding episodes The development of cryoprecipitate and factor replacement therapies How prophylaxis changed outcomes for patients with hemophilia The impact of recombinant products and improved blood safety Gene therapy and emerging treatment options for the future Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple | Spotify | iHeart | Amazon Music | Pandora | Deezer | YouTube The post The Evolution of Hemophilia Treatment with Dr. Ken Friedman appeared first on Hemophilia Outreach Center .

  ListenShow Notes

Recent guests on Beyond the Bleeds. Study who booked and why before you pitch.

Based on semantic analysis of episode topics and host coverage, this show is a strong guest fit for executives in:

Industry fit is computed by PitchCentric using vector embeddings of the show's episode catalog.